Wow. Two posts in one day. Will admit that this one is wine driven. Again, don't know why I am driven to do this brain data dump. I just have all this crap that I need to get out. And someone doing it this way is more public than my grief journal, less public than FaceBook (because God knows that the last thing I need is an impersonal "like" response to any of this.) And this is a message to Next Year Self. When I look back and see where I was.
I think I missed an important part of my dream. I was wearing a sheer fluttery red shawl. I realize I was wearing a cape.
Since childhood, a symbol of strength. Because, dammit, whether or not I want to be, I am strong.
I was strong for Bob, held his hand, sometimes walked him away from a bedside, when his mother died in April 2008, and then his father in December 2009. I took care of him.
Fast forward three years. My mother (my closest friend, the one person who completely understood me, perhaps even more than Bob) is on her last trip to the ER. Septic UTI. I'm in the room with her - the nurse needs to put in a catheter and Mom is fighting her. The nurse looks at me; I ask what I need to do. She says that Mom needs to bend a knee so that she can get the catheter in. I slide an arm under Mom's shoulder, giving her a hug, saying "I'm sorry, Mommy. I wish you could understand." Then I slide a hand under her knee and pull it up while she screams.
I never wanted to be that strong.
A few days later I'm talking with the doctor in the hospital. She wants to do a cutdown to drain Mom's lungs, which will prolong her life. I'm thinking "will she be able to go back to the apartment with Dad?" No. Will she be able to get out of the wheelchair and walk." No. "Will she get her mind back and be able to think clearly again." No.
So I look at the doctor and say, "No." We move her to hospice. Neither Dad nor Bob has the strength to visit her there. Michael is in Boston; offers to come down, but there is really nothing she can do. I move into the hospice house and live with her for the last three days, holding her hand when she dies.
I never wanted to be that strong.
Fast forward three years. Dad had moved into the nursing home, wanting nothing more than to finish this life, but his body hasn't gotten the word so it takes too long Finally the day comes that his mind is wandering, and his lungs seem to be clogging. The nurses at the home ask if I want to have him sent to the hospital, get X-rays, possibly medication. Again, I say "No."
I get the call at 4:00 a.m. that it is over. Before we head out the door I grab a suitcase because I have been going to the nursing home 4-5 days a week for almost three years and I don't want to ever go there again. The funeral home has sent a man to take his body; Bob waits outside while I assist in moving him to the body bag. Then I methodically take the few things in his room - the family pictures on the walls, his watch and rings, bits and pieces that are all that's left of a long life.
I never wanted to be that strong.
Fast forward three and a half years. Bob might possibly survive - if he has his infected pick line taken out and a new one installed on the other side of his chest. Lots of drugs - antibiotics, anti-fungal, anti-viral (all of which interfere with each other). Dialysis for possibly the rest of his life.
So I say No.
I never wanted to be that strong.
But I am. Wherever I go, whatever I do - playing with the cats, working in the yard, building one of my creations, working at the museum, chatting with my friends - invisible to all, I feel the weight of that red cape.